We are humbled by the positive impact Boleh has been able to make on those living with Huntingdon’s disease. Following a contact at last year’s Southampton Boat Show, Hampshire and IOW Huntington’s Disease Association (HDA) Branch Secretary, Annette Scivier, recently brought some of her members to sail in Boleh. Their object, to assess whether Boleh and the ‘Can-do’ ethos would suit the respite needs of HDA members and their families.
In perfect sailing weather our volunteers, Skipper Nigel and Mate Ant, helped by Deborah White of Thales UK, took Annette who had lost her husband to the disease, and her daughter out on the Solent. Boleh also sailed Janet, a Gosport-based HDA member living with Huntingdon’s and two Gosport teenagers with their father who was also a sufferer. Everyone was able to enjoy helming Boleh in bright sunshine and learn a little about offshore sailing – and all in controlled safety.
We’re pleased to say HDA reactions to the day were very heartening: “I am so happy I could cry!” “There just are those days when everything works out perfectly and everyone ends up smiling.” “This trip definitely helped boost my daughter’s self esteem.” and “An amazing day!” The verdict of Boleh’s crew: “One of the clearest indications experienced of Boleh and the ‘Can Do’ ethos working at so many levels to provide respite to individuals and families facing challenge in their lives.”
